Friday, December 10, 2021

An anonymous $550 million gift to Western Michigan University will help fund tuition-free education and low-cost housing

This is not specifically relevant to news about developmental disabilities, but it is the sort of thing everyone should know about and pass on to friends who might benefit from this.The dog at left is the late Lucy Barker, not to be confused with our current dog, Polly Barker.

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An anonymous $550 million gift to Western Michigan University in Kalamazoo, Michigan, will help fund “tuition-free education, low-cost housing, a new innovative Living Learning Community and internship stipends for students attending the Kalamazoo school”, according to an article in the Detroit Free Press by David Jesse, 12/9/21. “It is the largest single gift ever given to any public university in the nation.”

According to the article, the University will launch several programs to help students:

  • “The first, the new Bronco Promise will provide a tuition-free WMU education for up to five years for first-year students who come from Michigan families earning an adjusted gross income of $50,000 or less who have net assets under $50,000, the school said in a news release. University officials plan to hand out the scholarships to 340 students in the 2022-23 academic year and a projected 600 students each year after.
  • “Western will also create a program to give up to $6,000 in housing and dining scholarships to 110 incoming students for their first year. That will cover about half of living expenses for a year, the school said. It will also create a new Living Learning Community for the students. They will live together in double occupancy rooms in a section of one of Western's residence halls. 
  • “Students who attend Kalamazoo Public Schools or have a Detroit or Grand Rapids address will get preference for the need-based scholarships, but all Michigan residents are eligible to apply. Applications are due Feb. 15, and decisions will be released in March.
  • “Western is also creating a program that will subsidize up to $3,600 in wages for up to 100 students each year with competitive, need-based stipends. The internships will be for students working with private and nonprofit organizations, the university said.”
  • “The school will also give 800 upper-level students each year a need-based award up to $1,000 that can be applied to tuition and fees to help students complete their degrees.”

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From Wikipedia: “Western Michigan University (WMU) is a public research university in Kalamazoo, Michigan. It was established in 1903 by Dwight B. Waldo. Its enrollment, as of the Fall 2019 semester, was 21,470... It is classified among 'R2: Doctoral Universities – High research activity'...

Monday, November 15, 2021

Thinking differently about COVID outbreaks with widespread vaccination and a better understanding of the virus

In an article in the San Francisco Chronicle,  "We need to start thinking differently about COVID outbreaks, says UCSF's Monica Gandhi", 11/11/21, Gandhi is critical of recent decisions that she believes are too restrictive, now that there are areas of the country with high rates of vaccination and evidence that some venues are not conducive to spread of the COVID virus. 

Monica Gandhi is an infectious diseases specialist and professor of medicine at the University of California San Francisco. I heard her on a podcast about a month ago speaking about the COVID pandemic with more nuance and less hysteria than what you hear from most non-experts and political commentators.  Many commentators flail around spouting numbers and terms that most people do not understand (including the speakers themselves) and irresponsibly interpret their misunderstandings to further one skewed political belief or another. I imagine some of Gandhi's thinking is controversial among fellow infectious disease experts, but that is as it should be. Discussion about uncertainties among experts about a contagious disease is what leads to better understanding and better evidence-based public policy decisions.

Her article is well-sourced for anyone wanting to learn more and to follow her reasoning.

My own interest in this is in keeping my sons, who have multiple disabilities, and other residents of their group home from contracting COVID. None of them need or deserve the consequences of sloppy thinking and excessive risk-taking that could lead to the preventable transmission of the virus. The so-called "Dignity of Risk" where many disability advocates see risk as a virtue, does not apply in this situation. 

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Excerpts from "We need to start thinking differently about COVID outbreaks, says UCSF's Monica Gandhi" by Monica Gandhi, 11/11/21

Gandhi takes issue with the recent cancellation of the University of California/USC football game after 44 students and staff tested positive for COVID despite a 99% vaccination rate: 

"...the cancellation of a highly anticipated game like this one due to COVID-19 has led to online speculation — fueled by scary headlines — about the dwindling efficacy of vaccination and a return to the conditions that led to last year’s deadly winter surge..."

High vaccination rates means that some restrictions can be lifted:

 "But, in truth, clusters of mostly asymptomatic cases among the vaccinated, like what we’re seeing at Cal, are neither cause for concern, nor unexpected with a virus that will become endemic. They are an emerging part of our new normal. And we need to start recognizing — and more importantly — speaking about them as such."

..."Prior to the availability of the vaccines, we employed a variety of techniques to control the virus...But things have changed. In areas of high vaccination, mass asymptomatic testing no longer needs to done for those who are vaccinated, according to Centers for Disease Control and Prevention guidelines. Even testing for coronavirus exposure should be confined to individuals who were in close contact of a symptomatic person."

Vaccines reduce transmission:

"...A study of symptomatic delta variant breakthroughs from Singapore showed that the viral load by a value on the PCR test (cycle threshold, a test that should not be used to make clinical decisions) may start as high, but quickly comes down in the vaccinated (compared to the unvaccinated). This makes sense, since the immune response in the vaccinated can take a moment to kick in and fight the virus..."

"It’s essential to remember that we only need to take emergency medical or public health measures if there are clinical implications in play...if vaccines reduce the chance of being infected (vaccinated people are 13 times less likely to be infected than unvaccinated) an asymptomatic vaccinated person should not be tested without a direct exposure from someone who is ill."

Different metrics should be used in determining restrictions:

"[Using asymptomatic case counts] public health officials in the Bay Area (except for Marin County) appear to be using this metric to determine the necessity of restrictions such as masks, instead of a more appropriate index like COVID hospitalizations...Young people have been restricted during the pandemic in the United States...to protect others. We owe it to them to return their lives to normal, especially when that was the promise of public health officials in the context of vaccine mandates at many colleges and universities. Football (an outside activity) was shown to be safe and lead to no transmissions in a study from last year, prior to vaccinations and in areas of high community transmission. It is too late for this Cal-USC football game, but we need to think of outbreaks differently from now on in the context of the vaccines and live our lives accordingly.

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See the original article for complete references. 

Wednesday, October 27, 2021

Another attempt to further privatize the Michigan Community Mental Health system

This is from the Community Mental Health Association of Michigan (CMHAM). From the Website - "The Community Mental Health Association of Michigan (CMHA) is the state association representing the state’s public Community Mental Health (CMH) centers, the public Prepaid Inpatient Health Plans (PIHP) public health plans formed and governed by the CMH centers and the providers within the CMH and PIHP provider networks." Michigan CMH agencies serve people with developmental disabilities, as well as individuals with mental illness and other disabilities.

Despite the flaws in the Michigan CMH system, and there are many, I agree with this statement - "This approach is nothing more than a [Medicaid] health plan money grab, these bills will not improve care for Michigan’s most vulnerable citizens, it will eliminate local decision making and only put more money into the pockets of insurance companies – this is BAD public policy." These are the same policies that the legislature, with the help of private Medicaid Health Plans, has been trying to impose on Michigan for at least the last 10 years.

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As you may know, [the CMHAM has been sending out alerts about the proposed legislation for months] the Senate Government Operations Committee has held three hearings on Senator Shirkey’s 2-bill integration package (9/14, 9/21 & 9/28). We believe as soon as Sen. Shirkey has the votes to move these bills in the Senate, he will vote them out of committee.

In recent media interviews, Sen. Shirkey has described his integration proposal as his top priority for his remaining time in the Michigan Senate. Given the fact that he chairs the committee and being Senate Majority Leader, he holds a tremendous amount of power and control over the day to day business in the Michigan Senate, we believe it is very likely these bills will move out of committee in the next couple of weeks.

Senate Bills 597 & 598 much like the 298 process from a couple years ago, would shift the Medicaid financing and managed care functions from the public PIHP system to private Medicaid Health Plans. We once again have significant concerns with this type of proposal and will be launching a series of action alerts to combat this harmful public policy initiative. This action alert will focus on local control & local decision making.

Make no mistake, SBs 597 & 598 eliminate local control and local decision making by the CMH and give it to for-profit insurance companies who are only accountable to non-elected bureaucrats in Lansing via contracts. Additionally, the bills will gut the local CMH system by allowing health plans to contract around CMHs and inserts specialty integrated plan (SIP) language into SB 598 which would allow health plans to remove CMHs from their local safety net role as community convener and collaborator.

REQUEST FOR ACTION: We are asking you to reach out to your legislators (House & Senate) and the Governor and URGE them to reject these bills when they come before them for a vote. We need to get as many Senators to oppose SBs 597 & 598 as possible. This approach is nothing more than a health plan money grab, these bills will not improve care for Michigan’s most vulnerable citizens, it will eliminate local decision making and only put more money into the pockets of insurance companies – this is BAD public policy.

**Please feel free to customize your response as you see fit**

We also need you to ask that the members of your Board of Directors, your staff, and your community partners make those same contacts – SIMPLY FORWARD THIS EMAIL TO THEM. This will not be the last action alert we send out on this topic, but it is critical that lawmakers hear from us – there has been tremendous turnover in the Michigan Legislature since 2016 (when 298 first appeared) this will be the first time many lawmakers are hearing about this issue.

Thank you in advance for your support and tireless advocacy on this important topic.

 
Click the link below to log in and send your message:
https://www.votervoice.net/BroadcastLinks/P5oQ02bJjoQ9w3Me_-yxiQ


Thursday, October 14, 2021

Ordinary heroes carry out an evacuation of people with IDD during Hurricane Ida


This is from the VOR newsletter, "The Voice", for Fall 2021. VOR, a Voice Of Reason, is a national nonprofit organization that has been speaking out for people with severe Intellectual and Developmental Disabilities (I/DD) for almost 40 years. VOR members from Louisiana had quite a story to tell about evacuating residents of community homes from New Orleans to safety in Mississippi.

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Ordinary Heroism: Evacuating Crossroads Louisiana During Hurricane Ida

By Susan McIlwain and Mary Kay Cowen, with Hugo Dwyer

How do you keep people with Intellectual and Developmental Disabilities safe during a hurricane?

Since Hurricane Katrina, the state of Louisiana has mandated every facility housing people with I/DD or the elderly to set up an emergency evacuation plan, and to perform annual mock evacuations to ensure that the residents of the facilities will be kept safe. On August 28, 2021, sixteen years to the day after Katrina, Hurricane Ida made landfall in Port Fourchon, just south of New Orleans.

Hurricane Ida was not the first threat to the Louisiana coast this year. Residents track the path and power of each storm to see which one might pose a major threat to their homes and communities. Ida had strengthened and weakened and been somewhat unpredictable in her course for a few days. In late August, it became clear that Ida was growing larger, wetter, and more dangerous, and that she was heading straight towards Southern Louisiana with New Orleans and surrounding areas receiving voluntary and/or mandatory evacuation orders.

Crossroads Louisiana is a non-profit provider founded in 1982 by Dr. Gerald Murphy to serve persons with I/DD in the Greater New Orleans area. Crossroads is currently run by Executive Director Susan McIlwain. The facility now consists of six 6-bed community homes, all ICF [Intermediate Care Facility] certified. They also oversee a Supervised Independent Living (SIL) program in which another 36 individuals live throughout the community in private homes or apartments.

24 hours before Ida was expected to make landfall, Susan made the call to move all of the seventy-two residents to safer ground at Camp Hopewell, a Christian Retreat located some 350 miles to the north in Oxford, MS. This was to be the second time that Crossroads had evacuated to Camp Hopewell, the first being during Hurricane Gustav in 2008. Crossroads has a written procedural manual for evacuation, and the staff had practiced mock evacuations annually, fine tuning and improving the procedures every time. Still, planning and trial runs are one thing. When a crisis hits, it’s all about execution.

Staff were contacted and asked if they could join in the evacuation and bring their families, or if they and their families had made other plans. She called on families of the residents, to see if they could help out. Among those families were Mary Kay and Mark Cowen. Mary Kay’s brother Tommy is a resident of one of the homes, and her husband Mark had catered many of their meals and was well known to the Crossroads family. Mary Kay and Mark packed up and left early Friday morning, to get to Camp Hopewell to obtain food and set up for the others. Meanwhile, Susan and the staff packed up sheets, towels, adult briefs, games, and anything else that might be needed, They hired a bus, loaded up Crossroads’ 13 mini-buses, and set out with staff and families in their own cars late at night, so that the residents would all have eaten, taken their medications, and be ready to sleep for most of the six- to seven-hour journey to Oxford.

When the caravan arrived the next morning, Mark and Mary Kay had set up to feed the weary travelers. Between the seventy residents, the staff and their families, and the families of the residents who came to help out, the group numbered around 140 people. Due to the Covid pandemic, Camp Hopewell had not been running most of its usual summer programs and retreats, so they were able to accommodate everyone. Families that owned pets had brought their dogs and cats and even a pet lizard (a bearded dragon, to be exact). Beds were assigned to residents and their families, though some of the families chose to relocate to motels nearby.

The evacuation plan had been written with specific tasks and responsibilities assigned to directors, program managers, and supervisors, who then worked with residential staff and volunteers to make sure that all of the residents’ needs were being met. It didn’t take long for the group to develop a new daily routine, some of it mirroring the daily activities from back home, some of it adjusted to the camp environment, and some of it adapted to the fact that they were working with a smaller staff augmented by volunteers.

Every day meant buying more food and necessities at a nearby Sam’s, cooking, cleaning, and of course, keeping the Crossroads residents active and entertained. Remarkably, there were very few incidents during these two weeks, either behavioral or medical, and all were of a minor nature. While the staff and families put in extra effort to make sure everything was running smoothly, the residents generally experienced the evacuation like two weeks at camp. And that’s exactly the way it was supposed to be.

“It was non-stop,” Susan remarked. “And until we were coming home, I didn’t realize how long we had been there. You do this, and do this and do this, and completely lose track of time. You don’t even think about it. You just do what you gotta do.”

Mary Kay describes watching all of this unfold, and getting to see the daily process of Crossroads’ work, “It never ceases to amaze me, what they do. You think you know about what’s happening on the surface, going on up front. But until you really experience what’s going on in the background, see it from the inside, you really don’t understand the challenges it takes to do what Crossroads and people like Crossroads do every day. I thought I had a clue, but this really opened my eyes.”

Once the storm had passed, a team of four traveled back to New Orleans to evaluate damage. They spent the day evaluating the situation, confirming that homes were safe, repairs were arranged, refrigerators and freezers were or would be secured or cleaned out. Once staff that remained in New Orleans had confirmed all of the client homes had electricity and usable water to Susan, she signaled that the group return with the least amount of disruption to care. At that point, groceries and other supplies (including gas) were obtained, everyone packed up their things, got back onto the buses and into their cars, and lined up for the caravan back to New Orleans.

The Crossroads group stayed at Camp Hopewell for thirteen days before being able to move back home. They’ve been back about two days at the time of this writing, and things are nowhere near back to normal. One home remains closed due to a bureaucratic snafu at one of the state agencies. There are still long lines for food and supplies. Folks are settling back in, but it will be a while before everything in New Orleans returns to normal.

The costs of this evacuation were extensive. Food for the group was estimated to have cost anywhere from $1,000 to over $1,200 per day. The motel rooms ran about $5,000 to $6,000. The bus cost about $2,500, plus the cost of gas for all of the vehicles. The stay at the campground itself cost about $30,000. Susan estimates the total for the evacuation will come in at around $60,000 or higher. Crossroads won’t receive any additional state or federal assistance for this evacuation, either. It’s all coming out of their own pocket.

Of course, there’s that other thing. There’s that thing that can’t be measured, that thing that can’t be written into an evacuation plan or assigned as a task. It’s that special thing that you feel, that you can see in the day-to-day workings of a group of ordinary people rising to meet the challenges of extraordinary circumstances. The success of this evacuation, the physical and emotional health of the Crossroads clients, and staff, and all of their families, the ability for everyone to just get it all done for two weeks during a crisis, it all boils down to the love and devotion of those involved. That’s what it’s all about.

Mary Kay Cowen has long been a member of the VOR Board of Directors.
Susan McIlwain, Executive Director of Crossroads Louisiana, has also served as a member of the Board and has participated in several of our Annual Conferences in Washington, D.C.

For more information about Crossroads Louisiana, or to make a contribution to help offset the costs of the evacuation, please go to https://crossroadslouisiana.org/ .